Baylor University Medical Center is one of 16 sites nationwide participating in a pilot study to determine how living donor transplant candidates fare after transplant, whether they actually donate or not. There are six liver transplant sites, including Baylor, and ten kidney programs participating in the study. The need for solid organ transplants is still growing but living donor transplants have actually declined from their peak in 2004. One of the major barriers to living organ donation is that long-term outcomes for donors are unclear. The Scientific Registry of Transplant Recipients (SRTR) has now launched the Living Donor Collective (LDC) to establish a living donor registry to study the long-term outcomes of living organ donation. Data collection began in April 2018.
The goal of the project is to establish a living organ donor registry where all living donor candidates who are evaluated will be entered into a database. All aspects of their physical and psychosocial well-being will be tracked. The (LDC) will follow up approximately one year after the transplant surgery or a year after the decision not to donate. Donors and non-donors will be followed to monitor long-term outcomes of both groups. Ultimately, the research collected over the next two years will provide people considering donating more detailed information about the long-term benefits and risks of living donation. www.livingdonorcollective.org